Recommend Your own Doctor on the Link on the Main Menu

Hello everyone,

I am working on my doctor Spreadsheet and it may be my last one.

WE CAN NOW post our doctors where they will stay and not roll off. If you go to the HOME Page and scroll down to the middle of the page, there is a place where you can recommend your specialist. You can post all the important information and it will no longer roll off into the discusssions.

Today I am working on my updated list and hope to post it early this week. However, I do not have all the pertinent information for your doctors and you do

This is especially cool for those of you who do not live in the United States,because many of your doctors are very hard for me to find on the internet. YOU CAN ALL NOW HELP your fellow members who are suffering from Eagles.

I do hope one of two of you try it. I would like to see all of the doctors now on my spreadsheet on the link for doctors.

Thank you


I am not going to drop my project yet, but I do think Bens Friends has provided a better way.If this version does not work for us, I am sure it can be improved in the future. I have not actually posted anything there but there are two other doctors out there. It would be nice if we helped use this link.

This is great Emma - thanks for all your hard work!

It was not my work, I just found it out there. I hope everyone will start using it.

heidemt said:

This is great Emma - thanks for all your hard work!

I am in the final stages of cleaning up my spreadsheet. I thought it might be nice to report that we have 36 doctors reported in the US, 2 in UK, 1 in South Africa, 3 in Australia, 1 in Scotland, 1 in Ireland, 1 in Denmark and 1 in Canada. Sadly it is not enough, but this site has not been in existance all that long. Thanks to Ben Munoz and Scott Urn that we even have this site, and I have been on another forum and it is nothing as well organized as this one. This is a very professional site and I pray for everyone with a rare disease of any kind to find support.

Where can I find the listing of recommended doctors in the US

Hi @Hollys,

The link is below. For future reference, the tab for the Doctors List is on the home page (click on the butterfly icon upper left of this page) under the Symptoms and Treatments category.